Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions

Elton H Lobo; Tara Johnson; Anne Frølich; Finn Kensing; Lene J Rasmussen; Sarah M Hosking; Amy T Page; Patricia M Livingston; Sheikh Mohammed Shariful Islam; John Grundy; Mohamed Abdelrazek

doi:10.1371/journal.pone.0262919

Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions

Elton H Lobo, Tara Johnson, Anne Frølich, Finn Kensing, Lene J Rasmussen, Sarah M Hosking, Amy T Page, Patricia M Livingston, Sheikh Mohammed Shariful Islam, John Grundy, Mohamed Abdelrazek

Research output: Contribution to journal › Article › peer-review

9 Citations (Scopus)

Abstract

BACKGROUND: Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care.

METHOD: Social media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction.

RESULTS: There was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources.

CONCLUSION: Findings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.

Original language	English
Article number	e0262919
Pages (from-to)	e0262919
Journal	PLoS One
Volume	17
Issue number	1 January
DOIs	https://doi.org/10.1371/journal.pone.0262919
Publication status	Published - Jan 2022
Externally published	Yes

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10.1371/journal.pone.0262919Licence: CC BY

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Lobo, E. H., Johnson, T., Frølich, A., Kensing, F., Rasmussen, L. J., Hosking, S. M., Page, A. T., Livingston, P. M., Islam, S. M. S., Grundy, J., & Abdelrazek, M. (2022). Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions. PLoS One, 17(1 January), e0262919. Article e0262919. https://doi.org/10.1371/journal.pone.0262919

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abstract = "BACKGROUND: Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care.METHOD: Social media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction.RESULTS: There was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources.CONCLUSION: Findings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.",

author = "Lobo, {Elton H} and Tara Johnson and Anne Fr{\o}lich and Finn Kensing and Rasmussen, {Lene J} and Hosking, {Sarah M} and Page, {Amy T} and Livingston, {Patricia M} and Islam, {Sheikh Mohammed Shariful} and John Grundy and Mohamed Abdelrazek",

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doi = "10.1371/journal.pone.0262919",

language = "English",

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Lobo, EH, Johnson, T, Frølich, A, Kensing, F, Rasmussen, LJ, Hosking, SM, Page, AT, Livingston, PM, Islam, SMS, Grundy, J & Abdelrazek, M 2022, 'Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions', PLoS One, vol. 17, no. 1 January, e0262919, pp. e0262919. https://doi.org/10.1371/journal.pone.0262919

TY - JOUR

T1 - Utilization of social media communities for caregiver information support in stroke recovery

T2 - An analysis of content and interactions

AU - Lobo, Elton H

AU - Johnson, Tara

AU - Frølich, Anne

AU - Kensing, Finn

AU - Rasmussen, Lene J

AU - Hosking, Sarah M

AU - Page, Amy T

AU - Livingston, Patricia M

AU - Islam, Sheikh Mohammed Shariful

AU - Grundy, John

AU - Abdelrazek, Mohamed

PY - 2022/1

Y1 - 2022/1

N2 - BACKGROUND: Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care.METHOD: Social media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction.RESULTS: There was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources.CONCLUSION: Findings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.

AB - BACKGROUND: Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care.METHOD: Social media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction.RESULTS: There was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources.CONCLUSION: Findings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.

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U2 - 10.1371/journal.pone.0262919

DO - 10.1371/journal.pone.0262919

M3 - Article

C2 - 35081150

SN - 1932-6203

VL - 17

SP - e0262919

JO - PLoS One

JF - PLoS One

IS - 1 January

M1 - e0262919

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Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions

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