The real power of your N

Sanne van Rijn; Dorinda 't Hart

The real power of your N

Research output: Contribution to conference › Conference presentation/ephemera

Abstract

The role of patient advocates is becoming more visible in research, bringing their unique lived experience into many different aspects of the research project. The patient advocates from Dutch and Australian families are working together to bring insight into what it means to live within a DCAA family, how this effects their daily lives and what they think you should know about them outside of the context of a (possible) participant. This session aims to bring a Community and Consumer Involvement perspective with practical implications of participant involvement in the DCAA research.

Original language	English
Publication status	Unpublished - 3 Nov 2022
Event	Eighth International CAA Conference: Researchers for Cerebral Amyloid Angiopathy - Perth, Australia Duration: 3 Nov 2022 → 5 Nov 2022 https://icaaconference.org

Conference

Conference	Eighth International CAA Conference
Country/Territory	Australia
City	Perth
Period	3/11/22 → 5/11/22
Internet address	https://icaaconference.org

Cite this

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title = "The real power of your N",

abstract = "The role of patient advocates is becoming more visible in research, bringing their unique lived experience into many different aspects of the research project. The patient advocates from Dutch and Australian families are working together to bring insight into what it means to live within a DCAA family, how this effects their daily lives and what they think you should know about them outside of the context of a (possible) participant. This session aims to bring a Community and Consumer Involvement perspective with practical implications of participant involvement in the DCAA research. ",

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author = "{van Rijn}, Sanne and {'t Hart}, Dorinda",

year = "2022",

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AU - van Rijn, Sanne

AU - 't Hart, Dorinda

PY - 2022/11/3

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N2 - The role of patient advocates is becoming more visible in research, bringing their unique lived experience into many different aspects of the research project. The patient advocates from Dutch and Australian families are working together to bring insight into what it means to live within a DCAA family, how this effects their daily lives and what they think you should know about them outside of the context of a (possible) participant. This session aims to bring a Community and Consumer Involvement perspective with practical implications of participant involvement in the DCAA research.

AB - The role of patient advocates is becoming more visible in research, bringing their unique lived experience into many different aspects of the research project. The patient advocates from Dutch and Australian families are working together to bring insight into what it means to live within a DCAA family, how this effects their daily lives and what they think you should know about them outside of the context of a (possible) participant. This session aims to bring a Community and Consumer Involvement perspective with practical implications of participant involvement in the DCAA research.

KW - community involvement

M3 - Conference presentation/ephemera

T2 - Eighth International CAA Conference

Y2 - 3 November 2022 through 5 November 2022

ER -

The real power of your N

Abstract

Conference

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Cite this