TY - BOOK
T1 - Sharing Linked Data for Health Research
T2 - Towards Better Decision Making
AU - Adams, Carolyn
AU - Allen, Judith
AU - Flack, Felicity
PY - 2022/6
Y1 - 2022/6
N2 - Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
AB - Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
U2 - 10.1017/9781108675789
DO - 10.1017/9781108675789
M3 - Book
SN - 9781108426640
T3 - Cambridge Bioethics and Law
BT - Sharing Linked Data for Health Research
PB - Cambridge Univesity Press
CY - Cambridge, UK
ER -