Shared care involving cancer specialists and primary care providers - What do cancer survivors want?

Sharon Lawn, Julia Fallon-Ferguson, Bogda Koczwara

    Research output: Contribution to journalArticle

    13 Citations (Scopus)

    Abstract

    BackgroundCancer survivors are living longer, prompting greater focus on managing cancer as a chronic condition. Shared care between primary care providers (PCPs) and cancer specialists, involving explicit partnership in how care is communicated, could ensure effective transitions between services. However, little is known about cancer patients' and survivors' preferences regarding shared care.

    ObjectiveTo explore Australian cancer survivors' views on shared care: what cancer survivors need from shared care; enablers and barriers to advancing shared care; and what successful shared care looks like.

    Setting and ParticipantsCommunity forum held in Adelaide, Australia, in 2015 with 21 participants: 11 cancer survivors, 2 family caregivers, and 8 clinicians and researchers (members of PC4-Primary Care Collaborative Cancer Clinical Trials Group).

    InterventionQualitative data from group discussion of the objectives.

    ResultsParticipants stressed that successful shared care required patients being at the centre, ensuring accurate communication, ownership, and access to their medical records. PCPs were perceived to lack skills and confidence to lead complex cancer care. Patients expressed burden in being responsible for navigating information sharing and communication processes between health professionals and services. Effective shared care should include: shared electronic health records, key individuals as care coordinators; case conferences; shared decision making; preparing patients for self-management; building general practitioners' skills; and measuring outcomes.

    Discussion and ConclusionsThere was clear support for shared care but a lack of good examples to help guide it for this population. Recognizing cancer as a chronic condition requires a shift in how care is provided to these patients.

    Original languageEnglish
    Pages (from-to)1081-1087
    Number of pages7
    JournalHealth Expectations
    Volume20
    Issue number5
    DOIs
    Publication statusPublished - Oct 2017

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