Research Priorities in CKD: Report of a National Workshop Conducted in Australia

A. Tong, S. Crowe, S. Chando, A. Cass, S.J. Chadban, J.R. Chapman, M. Gallagher, C.M. Hawley, S. Hill, K. Howard, D.W. Johnson, P.G. Kerr, Anne Mckenzie, D. Parker, V. Perkovic, K.R. Polkinghorne, C. Pollock, G.F.M. Strippoli, P. Tugwell, R.G. Walker & 3 others A.C. Webster, G. Wong, J.C. Craig

Research output: Contribution to journalArticle

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Abstract

Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using processes that lack transparency. A national workshop was convened in Australia to generate and prioritize research questions in chronic kidney disease (CKD) among diverse stakeholder groups. Patients with CKD (n = 23), nephrologists/surgeons (n = 16), nurses (n = 8), caregivers (n = 7), and allied health professionals and researchers (n = 4) generated and voted on intervention questions across 4 treatment categories: CKD stages 1 to 5 (non-dialysis dependent), peritoneal dialysis, hemodialysis, and kidney transplantation. The 5 highest ranking questions (in descending order) were as follows: How effective are lifestyle programs for preventing deteriorating kidney function in early CKD? What strategies will improve family consent for deceased donor kidney donation, taking different cultural groups into account? What interventions can improve long-term post-transplant outcomes? What are effective interventions for post hemodialysis fatigue? How can we improve and individualize drug therapy to control post-transplant side effects? Priority questions were focused on prevention, lifestyle, quality of life, and long-term impact. These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders.
Original languageEnglish
Pages (from-to)212-222
JournalAmerican Journal of Kidney Diseases
Volume66
Issue number2
Early online date3 May 2015
DOIs
Publication statusPublished - Aug 2015

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Chronic Renal Insufficiency
Education
Research
Caregivers
Renal Dialysis
Life Style
Consumer Organizations
Research Personnel
Transplants
Kidney
Allied Health Personnel
Peritoneal Dialysis
Administrative Personnel
Kidney Transplantation
Fatigue
Nurses
Quality of Life
Tissue Donors
Drug Therapy
Health

Cite this

Tong, A., Crowe, S., Chando, S., Cass, A., Chadban, S. J., Chapman, J. R., ... Craig, J. C. (2015). Research Priorities in CKD: Report of a National Workshop Conducted in Australia. American Journal of Kidney Diseases, 66(2), 212-222. https://doi.org/10.1053/j.ajkd.2015.02.341
Tong, A. ; Crowe, S. ; Chando, S. ; Cass, A. ; Chadban, S.J. ; Chapman, J.R. ; Gallagher, M. ; Hawley, C.M. ; Hill, S. ; Howard, K. ; Johnson, D.W. ; Kerr, P.G. ; Mckenzie, Anne ; Parker, D. ; Perkovic, V. ; Polkinghorne, K.R. ; Pollock, C. ; Strippoli, G.F.M. ; Tugwell, P. ; Walker, R.G. ; Webster, A.C. ; Wong, G. ; Craig, J.C. / Research Priorities in CKD: Report of a National Workshop Conducted in Australia. In: American Journal of Kidney Diseases. 2015 ; Vol. 66, No. 2. pp. 212-222.
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Tong, A, Crowe, S, Chando, S, Cass, A, Chadban, SJ, Chapman, JR, Gallagher, M, Hawley, CM, Hill, S, Howard, K, Johnson, DW, Kerr, PG, Mckenzie, A, Parker, D, Perkovic, V, Polkinghorne, KR, Pollock, C, Strippoli, GFM, Tugwell, P, Walker, RG, Webster, AC, Wong, G & Craig, JC 2015, 'Research Priorities in CKD: Report of a National Workshop Conducted in Australia' American Journal of Kidney Diseases, vol. 66, no. 2, pp. 212-222. https://doi.org/10.1053/j.ajkd.2015.02.341

Research Priorities in CKD: Report of a National Workshop Conducted in Australia. / Tong, A.; Crowe, S.; Chando, S.; Cass, A.; Chadban, S.J.; Chapman, J.R.; Gallagher, M.; Hawley, C.M.; Hill, S.; Howard, K.; Johnson, D.W.; Kerr, P.G.; Mckenzie, Anne; Parker, D.; Perkovic, V.; Polkinghorne, K.R.; Pollock, C.; Strippoli, G.F.M.; Tugwell, P.; Walker, R.G.; Webster, A.C.; Wong, G.; Craig, J.C.

In: American Journal of Kidney Diseases, Vol. 66, No. 2, 08.2015, p. 212-222.

Research output: Contribution to journalArticle

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AU - Howard, K.

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AU - Craig, J.C.

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