Rare disease education in Europe and beyond: time to act

Birute Tumiene, Harm Peters, Bela Melegh, Borut Peterlin, Algirdas Utkus, Natalja Fatkulina, György Pfliegler, Holm Graessner, Sanja Hermanns, Maurizio Scarpa, Jean Yves Blay, Sharon Ashton, Lucy McKay, Gareth Baynam

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