Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

Jenny Downs, Peter Jacoby, Helen Leonard, Amy Epstein, Nada Murphy, Elise Davis, Dinah Reddihough, Andrew Whitehouse, Katrina Williams

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Purpose: Children with intellectual disability encounter daily challenges beyond those captured in current quality of life measures. This study evaluated a new parent-report measure for children with intellectual disability, the Quality of Life Inventory-Disability (QI-Disability). Methods: QI-Disability was administered to 253 primary caregivers of children (aged 5–18 years) with intellectual disability across four diagnostic groups: Rett syndrome, Down syndrome, cerebral palsy or autism spectrum disorder. Exploratory and confirmatory factor analyses were conducted and goodness of fit of the factor structure assessed. Associations between QI-Disability scores, and diagnostic and age groups were examined with linear regression. Results: Six domains were identified: physical health, positive emotions, negative emotions, social interaction, leisure and the outdoors, and independence. Goodness-of-fit statistics were satisfactory and similar for the whole sample and when the sample was split by ability to walk or talk. On 100 point scales and compared to Rett syndrome, children with Down syndrome had higher leisure and the outdoors (coefficient 10.6, 95% CI 3.4,17.8) and independence (coefficient 29.7, 95% CI 22.9, 36.5) scores, whereas children with autism spectrum disorder had lower social interaction scores (coefficient − 12.8, 95% CI − 19.3, − 6.4). Scores for positive emotions (coefficient − 6.1, 95% CI − 10.7, − 1.6) and leisure and the outdoors (coefficient 5.4, 95% CI − 10.6, − 0.1) were lower for adolescents compared with children. Conclusions: Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability. It has the potential to allow clearer identification of support needs and measure responsiveness to interventions.

Original languageEnglish
Pages (from-to)783-794
Number of pages12
JournalQuality of Life Research
Volume28
Issue number3
DOIs
Publication statusPublished - 15 Mar 2019

Fingerprint

Psychometrics
Quality of Life
Intellectual Disability
Equipment and Supplies
Leisure Activities
Rett Syndrome
Emotions
Disabled Children
Interpersonal Relations
Down Syndrome
Aptitude
Cerebral Palsy
Caregivers
Statistical Factor Analysis
Linear Models
Age Groups
Health

Cite this

Downs, Jenny ; Jacoby, Peter ; Leonard, Helen ; Epstein, Amy ; Murphy, Nada ; Davis, Elise ; Reddihough, Dinah ; Whitehouse, Andrew ; Williams, Katrina. / Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure. In: Quality of Life Research. 2019 ; Vol. 28, No. 3. pp. 783-794.
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abstract = "Purpose: Children with intellectual disability encounter daily challenges beyond those captured in current quality of life measures. This study evaluated a new parent-report measure for children with intellectual disability, the Quality of Life Inventory-Disability (QI-Disability). Methods: QI-Disability was administered to 253 primary caregivers of children (aged 5–18 years) with intellectual disability across four diagnostic groups: Rett syndrome, Down syndrome, cerebral palsy or autism spectrum disorder. Exploratory and confirmatory factor analyses were conducted and goodness of fit of the factor structure assessed. Associations between QI-Disability scores, and diagnostic and age groups were examined with linear regression. Results: Six domains were identified: physical health, positive emotions, negative emotions, social interaction, leisure and the outdoors, and independence. Goodness-of-fit statistics were satisfactory and similar for the whole sample and when the sample was split by ability to walk or talk. On 100 point scales and compared to Rett syndrome, children with Down syndrome had higher leisure and the outdoors (coefficient 10.6, 95{\%} CI 3.4,17.8) and independence (coefficient 29.7, 95{\%} CI 22.9, 36.5) scores, whereas children with autism spectrum disorder had lower social interaction scores (coefficient − 12.8, 95{\%} CI − 19.3, − 6.4). Scores for positive emotions (coefficient − 6.1, 95{\%} CI − 10.7, − 1.6) and leisure and the outdoors (coefficient 5.4, 95{\%} CI − 10.6, − 0.1) were lower for adolescents compared with children. Conclusions: Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability. It has the potential to allow clearer identification of support needs and measure responsiveness to interventions.",
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Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure. / Downs, Jenny; Jacoby, Peter; Leonard, Helen; Epstein, Amy; Murphy, Nada; Davis, Elise; Reddihough, Dinah; Whitehouse, Andrew; Williams, Katrina.

In: Quality of Life Research, Vol. 28, No. 3, 15.03.2019, p. 783-794.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

AU - Downs, Jenny

AU - Jacoby, Peter

AU - Leonard, Helen

AU - Epstein, Amy

AU - Murphy, Nada

AU - Davis, Elise

AU - Reddihough, Dinah

AU - Whitehouse, Andrew

AU - Williams, Katrina

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N2 - Purpose: Children with intellectual disability encounter daily challenges beyond those captured in current quality of life measures. This study evaluated a new parent-report measure for children with intellectual disability, the Quality of Life Inventory-Disability (QI-Disability). Methods: QI-Disability was administered to 253 primary caregivers of children (aged 5–18 years) with intellectual disability across four diagnostic groups: Rett syndrome, Down syndrome, cerebral palsy or autism spectrum disorder. Exploratory and confirmatory factor analyses were conducted and goodness of fit of the factor structure assessed. Associations between QI-Disability scores, and diagnostic and age groups were examined with linear regression. Results: Six domains were identified: physical health, positive emotions, negative emotions, social interaction, leisure and the outdoors, and independence. Goodness-of-fit statistics were satisfactory and similar for the whole sample and when the sample was split by ability to walk or talk. On 100 point scales and compared to Rett syndrome, children with Down syndrome had higher leisure and the outdoors (coefficient 10.6, 95% CI 3.4,17.8) and independence (coefficient 29.7, 95% CI 22.9, 36.5) scores, whereas children with autism spectrum disorder had lower social interaction scores (coefficient − 12.8, 95% CI − 19.3, − 6.4). Scores for positive emotions (coefficient − 6.1, 95% CI − 10.7, − 1.6) and leisure and the outdoors (coefficient 5.4, 95% CI − 10.6, − 0.1) were lower for adolescents compared with children. Conclusions: Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability. It has the potential to allow clearer identification of support needs and measure responsiveness to interventions.

AB - Purpose: Children with intellectual disability encounter daily challenges beyond those captured in current quality of life measures. This study evaluated a new parent-report measure for children with intellectual disability, the Quality of Life Inventory-Disability (QI-Disability). Methods: QI-Disability was administered to 253 primary caregivers of children (aged 5–18 years) with intellectual disability across four diagnostic groups: Rett syndrome, Down syndrome, cerebral palsy or autism spectrum disorder. Exploratory and confirmatory factor analyses were conducted and goodness of fit of the factor structure assessed. Associations between QI-Disability scores, and diagnostic and age groups were examined with linear regression. Results: Six domains were identified: physical health, positive emotions, negative emotions, social interaction, leisure and the outdoors, and independence. Goodness-of-fit statistics were satisfactory and similar for the whole sample and when the sample was split by ability to walk or talk. On 100 point scales and compared to Rett syndrome, children with Down syndrome had higher leisure and the outdoors (coefficient 10.6, 95% CI 3.4,17.8) and independence (coefficient 29.7, 95% CI 22.9, 36.5) scores, whereas children with autism spectrum disorder had lower social interaction scores (coefficient − 12.8, 95% CI − 19.3, − 6.4). Scores for positive emotions (coefficient − 6.1, 95% CI − 10.7, − 1.6) and leisure and the outdoors (coefficient 5.4, 95% CI − 10.6, − 0.1) were lower for adolescents compared with children. Conclusions: Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability. It has the potential to allow clearer identification of support needs and measure responsiveness to interventions.

KW - Adolescence

KW - Child

KW - Intellectual disability

KW - Measurement

KW - Quality of life

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