Patient work from a context and time use perspective: a mixed-methods study protocol

Kathleen Yin, Teresa Harms, Kenneth Ho, Frances Rapport, Sanjyot Vagholkar, Liliana Laranjo, Enrico Coiera, Jonathan Gershuny, Annie Y. S. Lau

Research output: Contribution to journalArticle

Abstract

Introduction Self-management is widely promoted but less attention is focused on the work required from patients. To date, many individuals struggle to practise self-management. 'Patient work', a concept that examines the 'work' involved in self-management, is an approach to understanding the tasks, effort, time and context from patient perspective. The purpose of our study is to use a novel approach combining non-obstructive observations via digital devices with in-depth qualitative data about health behaviours and motivations, to capture the full range of patient work experienced by people with type 2 diabetes and chronic comorbidities. It aims to yield comprehensive insights about 'what works' in self-management, potentially extending to populations with other chronic health conditions.

Methods and analysis This mixed-methods observational study involves a (1) prestudy interview and questionnaires, (2) a 24-hour period during which participants wear a camera and complete a time-use diary, and a (3) poststudy interview and study feedback. Adult participants living with type 2 diabetes with at least one chronic comorbidity will be recruited using purposive sampling to obtain a balanced gender ratio and of participants using insulin and those using only oral medication. Interviews will be analysed using thematic analysis. Data captured by digital devices, diaries and questionnaires will be used to analyse the duration, time, context and patterns of health-related behaviours.

Ethics and dissemination The study was approved by the Macquarie University Human Research Ethics Committee for Medical Sciences (reference number 5201700718). Participants will carry a wallet-sized card that explains the purpose of the study to third parties, and can remove the camera at any stage. Before the poststudy interview begins, participants will view the camera images in private and can delete any images. Should any images be used in future publications or presentations, identifying features such as human faces and names will be obscured.

Original languageEnglish
Article number022163
Number of pages8
JournalBMJ Open
Volume8
Issue number12
DOIs
Publication statusPublished - Dec 2018

Cite this

Yin, K., Harms, T., Ho, K., Rapport, F., Vagholkar, S., Laranjo, L., ... Lau, A. Y. S. (2018). Patient work from a context and time use perspective: a mixed-methods study protocol. BMJ Open, 8(12), [022163]. https://doi.org/10.1136/bmjopen-2018-022163
Yin, Kathleen ; Harms, Teresa ; Ho, Kenneth ; Rapport, Frances ; Vagholkar, Sanjyot ; Laranjo, Liliana ; Coiera, Enrico ; Gershuny, Jonathan ; Lau, Annie Y. S. / Patient work from a context and time use perspective : a mixed-methods study protocol. In: BMJ Open. 2018 ; Vol. 8, No. 12.
@article{40c31fb995b54b05afee9d1ecd8a25d0,
title = "Patient work from a context and time use perspective: a mixed-methods study protocol",
abstract = "Introduction Self-management is widely promoted but less attention is focused on the work required from patients. To date, many individuals struggle to practise self-management. 'Patient work', a concept that examines the 'work' involved in self-management, is an approach to understanding the tasks, effort, time and context from patient perspective. The purpose of our study is to use a novel approach combining non-obstructive observations via digital devices with in-depth qualitative data about health behaviours and motivations, to capture the full range of patient work experienced by people with type 2 diabetes and chronic comorbidities. It aims to yield comprehensive insights about 'what works' in self-management, potentially extending to populations with other chronic health conditions.Methods and analysis This mixed-methods observational study involves a (1) prestudy interview and questionnaires, (2) a 24-hour period during which participants wear a camera and complete a time-use diary, and a (3) poststudy interview and study feedback. Adult participants living with type 2 diabetes with at least one chronic comorbidity will be recruited using purposive sampling to obtain a balanced gender ratio and of participants using insulin and those using only oral medication. Interviews will be analysed using thematic analysis. Data captured by digital devices, diaries and questionnaires will be used to analyse the duration, time, context and patterns of health-related behaviours.Ethics and dissemination The study was approved by the Macquarie University Human Research Ethics Committee for Medical Sciences (reference number 5201700718). Participants will carry a wallet-sized card that explains the purpose of the study to third parties, and can remove the camera at any stage. Before the poststudy interview begins, participants will view the camera images in private and can delete any images. Should any images be used in future publications or presentations, identifying features such as human faces and names will be obscured.",
keywords = "MULTIPLE CHRONIC CONDITIONS, SELF-MANAGEMENT SUPPORT, DIABETES-MELLITUS, CONSUMER HEALTH, PRIMARY-CARE, SYSTEM, MODEL, DEPRESSION, FRAMEWORK, BARRIERS",
author = "Kathleen Yin and Teresa Harms and Kenneth Ho and Frances Rapport and Sanjyot Vagholkar and Liliana Laranjo and Enrico Coiera and Jonathan Gershuny and Lau, {Annie Y. S.}",
year = "2018",
month = "12",
doi = "10.1136/bmjopen-2018-022163",
language = "English",
volume = "8",
journal = "BMJ (Open)",
issn = "2044-6055",
publisher = "John Wiley & Sons",
number = "12",

}

Yin, K, Harms, T, Ho, K, Rapport, F, Vagholkar, S, Laranjo, L, Coiera, E, Gershuny, J & Lau, AYS 2018, 'Patient work from a context and time use perspective: a mixed-methods study protocol' BMJ Open, vol. 8, no. 12, 022163. https://doi.org/10.1136/bmjopen-2018-022163

Patient work from a context and time use perspective : a mixed-methods study protocol. / Yin, Kathleen; Harms, Teresa; Ho, Kenneth; Rapport, Frances; Vagholkar, Sanjyot; Laranjo, Liliana; Coiera, Enrico; Gershuny, Jonathan; Lau, Annie Y. S.

In: BMJ Open, Vol. 8, No. 12, 022163, 12.2018.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Patient work from a context and time use perspective

T2 - a mixed-methods study protocol

AU - Yin, Kathleen

AU - Harms, Teresa

AU - Ho, Kenneth

AU - Rapport, Frances

AU - Vagholkar, Sanjyot

AU - Laranjo, Liliana

AU - Coiera, Enrico

AU - Gershuny, Jonathan

AU - Lau, Annie Y. S.

PY - 2018/12

Y1 - 2018/12

N2 - Introduction Self-management is widely promoted but less attention is focused on the work required from patients. To date, many individuals struggle to practise self-management. 'Patient work', a concept that examines the 'work' involved in self-management, is an approach to understanding the tasks, effort, time and context from patient perspective. The purpose of our study is to use a novel approach combining non-obstructive observations via digital devices with in-depth qualitative data about health behaviours and motivations, to capture the full range of patient work experienced by people with type 2 diabetes and chronic comorbidities. It aims to yield comprehensive insights about 'what works' in self-management, potentially extending to populations with other chronic health conditions.Methods and analysis This mixed-methods observational study involves a (1) prestudy interview and questionnaires, (2) a 24-hour period during which participants wear a camera and complete a time-use diary, and a (3) poststudy interview and study feedback. Adult participants living with type 2 diabetes with at least one chronic comorbidity will be recruited using purposive sampling to obtain a balanced gender ratio and of participants using insulin and those using only oral medication. Interviews will be analysed using thematic analysis. Data captured by digital devices, diaries and questionnaires will be used to analyse the duration, time, context and patterns of health-related behaviours.Ethics and dissemination The study was approved by the Macquarie University Human Research Ethics Committee for Medical Sciences (reference number 5201700718). Participants will carry a wallet-sized card that explains the purpose of the study to third parties, and can remove the camera at any stage. Before the poststudy interview begins, participants will view the camera images in private and can delete any images. Should any images be used in future publications or presentations, identifying features such as human faces and names will be obscured.

AB - Introduction Self-management is widely promoted but less attention is focused on the work required from patients. To date, many individuals struggle to practise self-management. 'Patient work', a concept that examines the 'work' involved in self-management, is an approach to understanding the tasks, effort, time and context from patient perspective. The purpose of our study is to use a novel approach combining non-obstructive observations via digital devices with in-depth qualitative data about health behaviours and motivations, to capture the full range of patient work experienced by people with type 2 diabetes and chronic comorbidities. It aims to yield comprehensive insights about 'what works' in self-management, potentially extending to populations with other chronic health conditions.Methods and analysis This mixed-methods observational study involves a (1) prestudy interview and questionnaires, (2) a 24-hour period during which participants wear a camera and complete a time-use diary, and a (3) poststudy interview and study feedback. Adult participants living with type 2 diabetes with at least one chronic comorbidity will be recruited using purposive sampling to obtain a balanced gender ratio and of participants using insulin and those using only oral medication. Interviews will be analysed using thematic analysis. Data captured by digital devices, diaries and questionnaires will be used to analyse the duration, time, context and patterns of health-related behaviours.Ethics and dissemination The study was approved by the Macquarie University Human Research Ethics Committee for Medical Sciences (reference number 5201700718). Participants will carry a wallet-sized card that explains the purpose of the study to third parties, and can remove the camera at any stage. Before the poststudy interview begins, participants will view the camera images in private and can delete any images. Should any images be used in future publications or presentations, identifying features such as human faces and names will be obscured.

KW - MULTIPLE CHRONIC CONDITIONS

KW - SELF-MANAGEMENT SUPPORT

KW - DIABETES-MELLITUS

KW - CONSUMER HEALTH

KW - PRIMARY-CARE

KW - SYSTEM

KW - MODEL

KW - DEPRESSION

KW - FRAMEWORK

KW - BARRIERS

U2 - 10.1136/bmjopen-2018-022163

DO - 10.1136/bmjopen-2018-022163

M3 - Article

VL - 8

JO - BMJ (Open)

JF - BMJ (Open)

SN - 2044-6055

IS - 12

M1 - 022163

ER -