Mapping the differences in care for 5,000 Spinal Muscular Atrophy patients, a survey of 24 national registries in North America, Australasia and Europe

C.L. Bladen, R. Thompson, J.M. Jackson, C. Garland, C. Wegel, A. Ambrosini, P. Pisano, M.C. Walter, O. Schreiber, A. Lusakowska, M. Jedrzejowska, A. Kostera-Pruszczyk, L. Van Der Pol, R.I. Wadman, O. Gredal, A. Karaduman, H. Topaloglu, O. Yilmaz, V. Matyushenko, V.M. RasicA. Kosac, V. Karcagi, M. Garami, A. Herczegfalvi, S. Monges, A. Moresco, L. Chertkoff, T. Chamova, V. Guergueltcheva, N. Butoianu, D. Craiu, L. Korngut, C. Campbell, J. Haberlova, J. Strenkova, M. Alejandro, A. Jimenez, G.G. Ortiz, G.V.G. Enriquez, M. Rodrigues, R. Roxburgh, H. Dawkins, L. Youngs, J. Lahdetie, N. Angelkova, P. Saugier-Veber, J.-M. Cuisset, C. Bloetzer, P.-Y. Jeannet, A. Klein, A. Nascimento, E. Tizzano, D. Salgado, E. Mercuri, T. Sejersen, J. Kirschner, K. Rafferty, V. Straub, K. Bushby, J. Verschuuren, C. Beroud, H. Lochmüller

Research output: Contribution to journalArticle

53 Citations (Scopus)
Original languageEnglish
Pages (from-to)152
JournalJournal of Neurology
Volume261
DOIs
Publication statusPublished - 2014

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