TY - JOUR
T1 - Living Kidney Donors' Experiences with the Health Care System
AU - Brown, J.B.
AU - Karley, M.L.
AU - Boudville, Neil
AU - Bullas, R.
AU - Garf, A.X.
AU - Muirhead, N.
A2 - Rosenberg, Gary
PY - 2008
Y1 - 2008
N2 - The purpose of this study was to explore living kidney donors' perceived experiences with the health care system from the period prior to being tested as a potential donor, through to post donation discharge and follow-up. Qualitative methodology, using a phenomenological approach, explored the experiences, feelings, and ideas of 12 purposefully selected living kidney donors' interface with the health care system. Eight men and four women were interviewed four to 29 years post donation. Interviews were audio taped and transcribed verbatim. An iterative and interpretive analysis was conducted. Themes emerging from the data included factors influencing living kidney donors' decision to be tested as potential donors, the importance of emotional support, and humanistic care. This in turn impacted on their experience of: (1) the role of information in the decision-making process; (2) their tolerance of issues related to hospitalization and; (3) their perception of the quality of care: The findings of this study provide suggestions for the role of social work and improvement in the health care system to better address the needs of living kidney donors.
AB - The purpose of this study was to explore living kidney donors' perceived experiences with the health care system from the period prior to being tested as a potential donor, through to post donation discharge and follow-up. Qualitative methodology, using a phenomenological approach, explored the experiences, feelings, and ideas of 12 purposefully selected living kidney donors' interface with the health care system. Eight men and four women were interviewed four to 29 years post donation. Interviews were audio taped and transcribed verbatim. An iterative and interpretive analysis was conducted. Themes emerging from the data included factors influencing living kidney donors' decision to be tested as potential donors, the importance of emotional support, and humanistic care. This in turn impacted on their experience of: (1) the role of information in the decision-making process; (2) their tolerance of issues related to hospitalization and; (3) their perception of the quality of care: The findings of this study provide suggestions for the role of social work and improvement in the health care system to better address the needs of living kidney donors.
U2 - 10.1300/J010v46n03_03
DO - 10.1300/J010v46n03_03
M3 - Article
SN - 0098-1389
VL - 46
SP - 53
EP - 68
JO - Social Work in Health Care: the journal of health care work
JF - Social Work in Health Care: the journal of health care work
IS - 3
ER -