Internet health information use by surrogate decision makers of patients admitted to the intensive care unit: a multicentre survey

Alexander Das, Matthew Anstey, Frances Bass, David Blythe, Heidi Buhr, Lewis Campbell, Ashish Davda, Anthony Delaney, David Gattas, Cameron Green, Janet Ferrier, Naomi Hammond, Annamaria Palermo, Susan Pellicano, Margaret Phillips, Adrian Regli, Brigit Roberts, Michelle Ross-King, Vineet Saroode, Shannon Simpson & 7 others Shakira Spiller, Kirsty Sullivan, Ravindranath Tiruvoipati, Frank van Haren, Sharon Waterson, Lai Kin Yaw, Edward Litton

Research output: Contribution to journalArticle

Abstract

Objectives: To investigate the use, understanding, trust and influence of the internet and other sources of health information used by the next of kin (NOK) of patients admitted to the intensive care unit (ICU).

Design: Multicentre structured survey.

Setting: The ICUs of 13 public and private Australian hospitals.

Participants: NOK who self-identified as the primary surrogate decision maker for a patient admitted to the ICU.

Main outcome measures: The frequency, understanding, trust and influence of online sources of health information, and the quality of health websites visited using the Health on the Net Foundation Code of Conduct (HONcode) for medical and health websites.

Results: There were 473 survey responses. The median ICU admission days and number of ICU visits by the NOK at the time of completing the survey was 3 (IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported sources of health information used very frequently were the ICU nurse (55.6%), ICU doctor (38.7%), family (23.3%), hospital doctor (21.4%), and the internet (11.3%). Compared with the 243 NOK (51.6%) not using the internet, NOK using the internet were less likely to report complete understanding (odds ratio [OR], 0.57; 95% CI, 0.38-0.88), trust (OR, 0.34; 95% CI, 0.19-0.59), or influence (OR, 0.58; 95% CI, 0.38-0.88) associated with the ICU doctor. Overall, the quality of the 40 different reported websites accessed was moderately high.

Conclusions: A substantial proportion of ICU NOK report using the internet as a source of health information. Internet use is associated with lower reported understanding, trust and influence of the ICU doctor.

Original languageEnglish
Pages (from-to)305-310
Number of pages6
JournalCritical Care and Resuscitation
Volume21
Issue number4
Publication statusPublished - Dec 2019

Cite this

Das, Alexander ; Anstey, Matthew ; Bass, Frances ; Blythe, David ; Buhr, Heidi ; Campbell, Lewis ; Davda, Ashish ; Delaney, Anthony ; Gattas, David ; Green, Cameron ; Ferrier, Janet ; Hammond, Naomi ; Palermo, Annamaria ; Pellicano, Susan ; Phillips, Margaret ; Regli, Adrian ; Roberts, Brigit ; Ross-King, Michelle ; Saroode, Vineet ; Simpson, Shannon ; Spiller, Shakira ; Sullivan, Kirsty ; Tiruvoipati, Ravindranath ; van Haren, Frank ; Waterson, Sharon ; Yaw, Lai Kin ; Litton, Edward. / Internet health information use by surrogate decision makers of patients admitted to the intensive care unit : a multicentre survey. In: Critical Care and Resuscitation. 2019 ; Vol. 21, No. 4. pp. 305-310.
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abstract = "Objectives: To investigate the use, understanding, trust and influence of the internet and other sources of health information used by the next of kin (NOK) of patients admitted to the intensive care unit (ICU).Design: Multicentre structured survey.Setting: The ICUs of 13 public and private Australian hospitals.Participants: NOK who self-identified as the primary surrogate decision maker for a patient admitted to the ICU.Main outcome measures: The frequency, understanding, trust and influence of online sources of health information, and the quality of health websites visited using the Health on the Net Foundation Code of Conduct (HONcode) for medical and health websites.Results: There were 473 survey responses. The median ICU admission days and number of ICU visits by the NOK at the time of completing the survey was 3 (IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported sources of health information used very frequently were the ICU nurse (55.6{\%}), ICU doctor (38.7{\%}), family (23.3{\%}), hospital doctor (21.4{\%}), and the internet (11.3{\%}). Compared with the 243 NOK (51.6{\%}) not using the internet, NOK using the internet were less likely to report complete understanding (odds ratio [OR], 0.57; 95{\%} CI, 0.38-0.88), trust (OR, 0.34; 95{\%} CI, 0.19-0.59), or influence (OR, 0.58; 95{\%} CI, 0.38-0.88) associated with the ICU doctor. Overall, the quality of the 40 different reported websites accessed was moderately high.Conclusions: A substantial proportion of ICU NOK report using the internet as a source of health information. Internet use is associated with lower reported understanding, trust and influence of the ICU doctor.",
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Das, A, Anstey, M, Bass, F, Blythe, D, Buhr, H, Campbell, L, Davda, A, Delaney, A, Gattas, D, Green, C, Ferrier, J, Hammond, N, Palermo, A, Pellicano, S, Phillips, M, Regli, A, Roberts, B, Ross-King, M, Saroode, V, Simpson, S, Spiller, S, Sullivan, K, Tiruvoipati, R, van Haren, F, Waterson, S, Yaw, LK & Litton, E 2019, 'Internet health information use by surrogate decision makers of patients admitted to the intensive care unit: a multicentre survey' Critical Care and Resuscitation, vol. 21, no. 4, pp. 305-310.

Internet health information use by surrogate decision makers of patients admitted to the intensive care unit : a multicentre survey. / Das, Alexander; Anstey, Matthew; Bass, Frances; Blythe, David; Buhr, Heidi; Campbell, Lewis; Davda, Ashish; Delaney, Anthony; Gattas, David; Green, Cameron; Ferrier, Janet; Hammond, Naomi; Palermo, Annamaria; Pellicano, Susan; Phillips, Margaret; Regli, Adrian; Roberts, Brigit; Ross-King, Michelle; Saroode, Vineet; Simpson, Shannon; Spiller, Shakira; Sullivan, Kirsty; Tiruvoipati, Ravindranath; van Haren, Frank; Waterson, Sharon; Yaw, Lai Kin; Litton, Edward.

In: Critical Care and Resuscitation, Vol. 21, No. 4, 12.2019, p. 305-310.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Internet health information use by surrogate decision makers of patients admitted to the intensive care unit

T2 - a multicentre survey

AU - Das, Alexander

AU - Anstey, Matthew

AU - Bass, Frances

AU - Blythe, David

AU - Buhr, Heidi

AU - Campbell, Lewis

AU - Davda, Ashish

AU - Delaney, Anthony

AU - Gattas, David

AU - Green, Cameron

AU - Ferrier, Janet

AU - Hammond, Naomi

AU - Palermo, Annamaria

AU - Pellicano, Susan

AU - Phillips, Margaret

AU - Regli, Adrian

AU - Roberts, Brigit

AU - Ross-King, Michelle

AU - Saroode, Vineet

AU - Simpson, Shannon

AU - Spiller, Shakira

AU - Sullivan, Kirsty

AU - Tiruvoipati, Ravindranath

AU - van Haren, Frank

AU - Waterson, Sharon

AU - Yaw, Lai Kin

AU - Litton, Edward

PY - 2019/12

Y1 - 2019/12

N2 - Objectives: To investigate the use, understanding, trust and influence of the internet and other sources of health information used by the next of kin (NOK) of patients admitted to the intensive care unit (ICU).Design: Multicentre structured survey.Setting: The ICUs of 13 public and private Australian hospitals.Participants: NOK who self-identified as the primary surrogate decision maker for a patient admitted to the ICU.Main outcome measures: The frequency, understanding, trust and influence of online sources of health information, and the quality of health websites visited using the Health on the Net Foundation Code of Conduct (HONcode) for medical and health websites.Results: There were 473 survey responses. The median ICU admission days and number of ICU visits by the NOK at the time of completing the survey was 3 (IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported sources of health information used very frequently were the ICU nurse (55.6%), ICU doctor (38.7%), family (23.3%), hospital doctor (21.4%), and the internet (11.3%). Compared with the 243 NOK (51.6%) not using the internet, NOK using the internet were less likely to report complete understanding (odds ratio [OR], 0.57; 95% CI, 0.38-0.88), trust (OR, 0.34; 95% CI, 0.19-0.59), or influence (OR, 0.58; 95% CI, 0.38-0.88) associated with the ICU doctor. Overall, the quality of the 40 different reported websites accessed was moderately high.Conclusions: A substantial proportion of ICU NOK report using the internet as a source of health information. Internet use is associated with lower reported understanding, trust and influence of the ICU doctor.

AB - Objectives: To investigate the use, understanding, trust and influence of the internet and other sources of health information used by the next of kin (NOK) of patients admitted to the intensive care unit (ICU).Design: Multicentre structured survey.Setting: The ICUs of 13 public and private Australian hospitals.Participants: NOK who self-identified as the primary surrogate decision maker for a patient admitted to the ICU.Main outcome measures: The frequency, understanding, trust and influence of online sources of health information, and the quality of health websites visited using the Health on the Net Foundation Code of Conduct (HONcode) for medical and health websites.Results: There were 473 survey responses. The median ICU admission days and number of ICU visits by the NOK at the time of completing the survey was 3 (IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported sources of health information used very frequently were the ICU nurse (55.6%), ICU doctor (38.7%), family (23.3%), hospital doctor (21.4%), and the internet (11.3%). Compared with the 243 NOK (51.6%) not using the internet, NOK using the internet were less likely to report complete understanding (odds ratio [OR], 0.57; 95% CI, 0.38-0.88), trust (OR, 0.34; 95% CI, 0.19-0.59), or influence (OR, 0.58; 95% CI, 0.38-0.88) associated with the ICU doctor. Overall, the quality of the 40 different reported websites accessed was moderately high.Conclusions: A substantial proportion of ICU NOK report using the internet as a source of health information. Internet use is associated with lower reported understanding, trust and influence of the ICU doctor.

KW - RISK

M3 - Article

VL - 21

SP - 305

EP - 310

JO - Critical Care and Resuscitation

JF - Critical Care and Resuscitation

SN - 1441-2772

IS - 4

ER -