TY - JOUR
T1 - IDEA (Intellectual Disability Exploring Answers): apopulation-based database for intellectual disability in Western Australia
AU - Petterson, B.
AU - Leonard, Helen
AU - Bourke, J.
AU - Sanders, R.
AU - Chalmers, R.
AU - Jacoby, P.
AU - Bower, Carol
PY - 2005
Y1 - 2005
N2 - Despite the demands it places on individuals, families and the community, intellectual disability ( ID) is a neglected area of public health. Accurate estimates of prevalence are sparse and range from 0.5 to 3.0%. The cause of the condition is unknown in at least 50% of cases. This paper describes the Intellectual Disability Exploring Answers ( IDEA) database set up in Western Australia to provide an infrastructure for research and to facilitate the planning of service provision for people with ID. Since 1953 a database for ID has been maintained in Western Australia, a state with a population of 1.95 million in an area of 2.52 million km(2). The current IDEA database aims to obtain ongoing population-based ascertainment of ID from providers of clinical and educational services, with the potential for linkage to a network of other state databases. The average prevalence of ID for children born in Western Australia over the years 1983 - 1996 was 15.2 per 1000 live births, with 50% ascertained only through the education system. During this time period 60% of cases were male. Of children with an ID born in Western Australia in 1980 - 1999 and surviving to 1 year, 30.1% had a birth defect, and the prevalence ratio of birth defects in this group compared to the population with no birth defects was 6.5 (CI 6.3 - 6.8).
AB - Despite the demands it places on individuals, families and the community, intellectual disability ( ID) is a neglected area of public health. Accurate estimates of prevalence are sparse and range from 0.5 to 3.0%. The cause of the condition is unknown in at least 50% of cases. This paper describes the Intellectual Disability Exploring Answers ( IDEA) database set up in Western Australia to provide an infrastructure for research and to facilitate the planning of service provision for people with ID. Since 1953 a database for ID has been maintained in Western Australia, a state with a population of 1.95 million in an area of 2.52 million km(2). The current IDEA database aims to obtain ongoing population-based ascertainment of ID from providers of clinical and educational services, with the potential for linkage to a network of other state databases. The average prevalence of ID for children born in Western Australia over the years 1983 - 1996 was 15.2 per 1000 live births, with 50% ascertained only through the education system. During this time period 60% of cases were male. Of children with an ID born in Western Australia in 1980 - 1999 and surviving to 1 year, 30.1% had a birth defect, and the prevalence ratio of birth defects in this group compared to the population with no birth defects was 6.5 (CI 6.3 - 6.8).
U2 - 10.1080/03014460500075035
DO - 10.1080/03014460500075035
M3 - Article
SN - 0301-4460
VL - 32
SP - 237
EP - 243
JO - Annals of Human Biology
JF - Annals of Human Biology
IS - 2
ER -