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Abstract
Aim: Hybrid closed-loop (HCL) therapy improves glycaemic control in adolescents with type 1 diabetes; however, little is known about their lived experience using these systems. The aim of this study was to explore the lived experiences of youth with type 1 diabetes using HCL therapy, and their parents, to provide insight into their lived experiences. Methods: Adolescents and young adults aged 12–25 years, who used Medtronic MiniMed™ 670G HCL system during a 6-month randomised clinical trial, and their parents, were invited to participate in a semi-structured interview at the end of the study. Open-ended questions were used to explore the lived experiences of families using HCL. The interviews were audio-recorded, transcribed and analysed using thematic analysis to determine the main themes. Results: In all, 17 young people with type 1 diabetes mean ± SD age: 17.5 ± 4.2 years, diabetes duration: 11.0 ± 4.9 years and HbA1c 64 ± 9 mmol/mol (8.0 ± 0.8%) and 10 parents were interviewed. Three themes were identified: (1) ‘Developing confidence and trust in the system’, (2) ‘Reduction in anxiety’ and (3) ‘Issues with device’. They reported a positive experience using HCL, with improvements in glucose levels and increased independence with diabetes management. However, frustration around the number of alarms and notifications associated with the system were also identified as issues. Conclusion: Both youth and parents acknowledged the benefits of this first-generation HCL system in improving glycaemic outcomes and in providing flexibility and independence. These lived experiences provide valuable information in the introduction and provision of targeted education with HCL therapy.
Original language | English |
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Article number | e14907 |
Journal | Diabetic Medicine |
Volume | 39 |
Issue number | 9 |
Early online date | 27 Jun 2022 |
DOIs | |
Publication status | Published - Sept 2022 |
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Dive into the research topics of 'Hybrid closed-loop therapy with a first-generation system increases confidence and independence in diabetes management in youth with type 1 diabetes'. Together they form a unique fingerprint.Projects
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Jones Improving the Lives of Young People with Type 1 Diabetes using State of the Art Therapies
Jones, T. (Investigator 01), Davis, E. (Investigator 02), Fournier, P. (Investigator 03), Keenan, D. (Investigator 04), Grey, M. (Investigator 05), Weinzimer, S. (Investigator 06), Geelhoed, E. (Investigator 07), Cross, D. (Investigator 08) & Tamborlane, W. (Investigator 09)
NHMRC National Health and Medical Research Council
1/01/15 → 30/04/21
Project: Research