Health care utilization and costs for children and adults with duchenne muscular dystrophy

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

© 2016 Wiley Periodicals, Inc. Introduction: Duchenne muscular dystrophy (DMD) is an incurable neuromuscular disorder of childhood. Healthcare, caregiving, and other resource needs of affected individuals are thought to be substantial; however, the economic burden associated with DMD has not yet been assessed specifically in Australia. Methods: Australian households with a child with DMD were asked to complete a cross-sectional survey. Data were collected on annual resource utilization including hospital and medical services, equipment, home modifications, informal care, and working days lost. Results: Mean healthcare costs were found to be $10,046 Australian dollars per affected individual and were markedly higher than average Australian health expenditures at each age group. The mean total cost was $46,700 (median $32,300), with healthcare costs contributing 22% of total costs. Conclusions: The annual economic cost of DMD was found to be high, reflecting a significant socioeconomic burden, especially in boys who reach adulthood, where household resource use and caregiving burden is highest.
Original languageEnglish
Pages (from-to)877-884
JournalMuscle and Nerve
Volume53
Issue number6
Early online date9 May 2016
DOIs
Publication statusPublished - Jun 2016

Fingerprint

Patient Acceptance of Health Care
Duchenne Muscular Dystrophy
Health Care Costs
Costs and Cost Analysis
Economics
Health Expenditures
Patient Care
Age Groups
Cross-Sectional Studies
Delivery of Health Care
Equipment and Supplies

Cite this

@article{f67828a09fbd43f9a77abcb79f411bde,
title = "Health care utilization and costs for children and adults with duchenne muscular dystrophy",
abstract = "{\circledC} 2016 Wiley Periodicals, Inc. Introduction: Duchenne muscular dystrophy (DMD) is an incurable neuromuscular disorder of childhood. Healthcare, caregiving, and other resource needs of affected individuals are thought to be substantial; however, the economic burden associated with DMD has not yet been assessed specifically in Australia. Methods: Australian households with a child with DMD were asked to complete a cross-sectional survey. Data were collected on annual resource utilization including hospital and medical services, equipment, home modifications, informal care, and working days lost. Results: Mean healthcare costs were found to be $10,046 Australian dollars per affected individual and were markedly higher than average Australian health expenditures at each age group. The mean total cost was $46,700 (median $32,300), with healthcare costs contributing 22{\%} of total costs. Conclusions: The annual economic cost of DMD was found to be high, reflecting a significant socioeconomic burden, especially in boys who reach adulthood, where household resource use and caregiving burden is highest.",
author = "Lucie Teoh and Elizabeth Geelhoed and K. Bayley and Helen Leonard and Nigel Laing",
year = "2016",
month = "6",
doi = "10.1002/mus.24965",
language = "English",
volume = "53",
pages = "877--884",
journal = "MUSCLE & NERVE",
issn = "0148-639X",
publisher = "John Wiley & Sons",
number = "6",

}

Health care utilization and costs for children and adults with duchenne muscular dystrophy. / Teoh, Lucie; Geelhoed, Elizabeth; Bayley, K.; Leonard, Helen; Laing, Nigel.

In: Muscle and Nerve, Vol. 53, No. 6, 06.2016, p. 877-884.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Health care utilization and costs for children and adults with duchenne muscular dystrophy

AU - Teoh, Lucie

AU - Geelhoed, Elizabeth

AU - Bayley, K.

AU - Leonard, Helen

AU - Laing, Nigel

PY - 2016/6

Y1 - 2016/6

N2 - © 2016 Wiley Periodicals, Inc. Introduction: Duchenne muscular dystrophy (DMD) is an incurable neuromuscular disorder of childhood. Healthcare, caregiving, and other resource needs of affected individuals are thought to be substantial; however, the economic burden associated with DMD has not yet been assessed specifically in Australia. Methods: Australian households with a child with DMD were asked to complete a cross-sectional survey. Data were collected on annual resource utilization including hospital and medical services, equipment, home modifications, informal care, and working days lost. Results: Mean healthcare costs were found to be $10,046 Australian dollars per affected individual and were markedly higher than average Australian health expenditures at each age group. The mean total cost was $46,700 (median $32,300), with healthcare costs contributing 22% of total costs. Conclusions: The annual economic cost of DMD was found to be high, reflecting a significant socioeconomic burden, especially in boys who reach adulthood, where household resource use and caregiving burden is highest.

AB - © 2016 Wiley Periodicals, Inc. Introduction: Duchenne muscular dystrophy (DMD) is an incurable neuromuscular disorder of childhood. Healthcare, caregiving, and other resource needs of affected individuals are thought to be substantial; however, the economic burden associated with DMD has not yet been assessed specifically in Australia. Methods: Australian households with a child with DMD were asked to complete a cross-sectional survey. Data were collected on annual resource utilization including hospital and medical services, equipment, home modifications, informal care, and working days lost. Results: Mean healthcare costs were found to be $10,046 Australian dollars per affected individual and were markedly higher than average Australian health expenditures at each age group. The mean total cost was $46,700 (median $32,300), with healthcare costs contributing 22% of total costs. Conclusions: The annual economic cost of DMD was found to be high, reflecting a significant socioeconomic burden, especially in boys who reach adulthood, where household resource use and caregiving burden is highest.

U2 - 10.1002/mus.24965

DO - 10.1002/mus.24965

M3 - Article

VL - 53

SP - 877

EP - 884

JO - MUSCLE & NERVE

JF - MUSCLE & NERVE

SN - 0148-639X

IS - 6

ER -