TY - JOUR
T1 - Facilitators, barriers, and strategies for supporting shared decision-making with people with intellectual disability
T2 - A West Australian primary healthcare professional perspective
AU - Teale, Kathryn
AU - Lewis, Abigail
AU - Skoss, Rachel
N1 - Publisher Copyright:
© 2024 Australasian Society for Intellectual Disability, Inc.
PY - 2025
Y1 - 2025
N2 - Background: Shared decision-making between patients and primary healthcare professionals positively impacts health outcomes. However, people with intellectual disability face additional barriers and require supported shared decision-making (SSDM) to participate. Little is known about how healthcare professionals use SSDM with this population. This paper explores the facilitators and barriers experienced, and strategies/resources employed by healthcare professionals working with people with intellectual disability. Method: Ten purposively sampled primary healthcare professionals participated in semi-structured interviews. This descriptive qualitative study used content analysis. Findings were compared with a proposed model of factors influencing triadic (the person with intellectual disability, their caregiver and the healthcare professional) SSDM. Results: Five factor categories emerged: previous training/experience; engagement and trust; effective collaboration with caregivers; organisational culture and contexts; and familiarity/confidence with communication support strategies and resources. Conclusions: Healthcare professionals can leverage pre-existing skills and knowledge, but provision of targeted professional development may reduce anxiety and increase successful SSDM.
AB - Background: Shared decision-making between patients and primary healthcare professionals positively impacts health outcomes. However, people with intellectual disability face additional barriers and require supported shared decision-making (SSDM) to participate. Little is known about how healthcare professionals use SSDM with this population. This paper explores the facilitators and barriers experienced, and strategies/resources employed by healthcare professionals working with people with intellectual disability. Method: Ten purposively sampled primary healthcare professionals participated in semi-structured interviews. This descriptive qualitative study used content analysis. Findings were compared with a proposed model of factors influencing triadic (the person with intellectual disability, their caregiver and the healthcare professional) SSDM. Results: Five factor categories emerged: previous training/experience; engagement and trust; effective collaboration with caregivers; organisational culture and contexts; and familiarity/confidence with communication support strategies and resources. Conclusions: Healthcare professionals can leverage pre-existing skills and knowledge, but provision of targeted professional development may reduce anxiety and increase successful SSDM.
KW - Adults with intellectual disability
KW - communication support
KW - primary healthcare professionals
KW - shared decision-making
UR - https://www.scopus.com/pages/publications/85210950796
U2 - 10.3109/13668250.2024.2424784
DO - 10.3109/13668250.2024.2424784
M3 - Article
C2 - 40390311
AN - SCOPUS:85210950796
SN - 1366-8250
VL - 50
SP - 127
EP - 138
JO - Journal of Intellectual and Developmental Disability
JF - Journal of Intellectual and Developmental Disability
IS - 2
ER -