Evaluation of an ankylosing spondylitis education and self-management program: Beneficial effects on ankylosing spondylitis specific outcomes

Charles A. Inderjeeth, Emma Boland, Clara Connor, Christina Johnson, Angela Jacques, Jean McQuade

Research output: Contribution to journalArticlepeer-review

7 Citations (Web of Science)

Abstract

Background: Self-management programs have demonstrated significant health benefits in people with musculoskeletal diseases. Aim: To examine the benefits of a tailored ankylosing spondylitis self-management program (ASSMP) delivered by trained health professionals for people with ankylosing spondylitis (AS) relative to health status, quality of life and disease activity. Methods: ASSMP was developed within a continuous quality improvement framework following a needs assessment and focus group discussions. Formal feedback from the group after each 6 week program cycle group by questionnaire helped refine the ASSMP. Patient health status, quality of life and disease activity were assessed at multiple time points up to 12 months. Results: Fifty-five percent were female; mean age 48.5 ± 15.2 years. Median time to AS diagnosis was 4 years (interquartile range: 1-10). AS disease activity Bath Ankylosing Spondylitis Global Score scores improved at 3, 6 and 12 months (P 

Original languageEnglish
Pages (from-to)434-444
Number of pages11
JournalInternational Journal of Rheumatic Diseases
Volume24
Issue number3
DOIs
Publication statusPublished - Mar 2021

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