Co-design of a neurodevelopment assessment scale: A study protocol

Anne Masi, Syeda Ishra Azim, Christa Lam-Cassettari, Mark Dadds, Antonio Mendoza Diaz, Georgina Henry, Lisa Karlov, Ping I. Lin, Kylie Ann Mallitt, Alicia Montgomery, Iva Strnadová, Andrew Whitehouse, Valsamma Eapen

Research output: Contribution to journalArticlepeer-review

Abstract

Neurodevelopmental disorders are a heterogeneous group of conditions with overlapping symptomatology and fluctuating developmental trajectories that transcend current diagnostic categorisation. There is a need for validated screening instruments which dimensionally assess symptomatology from a holistic, transdiagnostic perspective. The primary aim is to co-design a Neurodevelopment Assessment Scale (NAS), a user-friendly transdiagnostic assessment inventory that systematically screens for all signs and symptoms commonly encountered in neurodevelopmental disorders. Our first objective is to undertake development of this tool, utilising co-design principles in partnership with stakeholders, including both those with lived experience of neurodevelopmental disorders and service providers. Our second objective is to evaluate the face validity, as well as the perceived utility, user-friendliness, suitability, and acceptability (i.e., ‘social validity’), of the NAS from the perspective of parents/caregivers and adults with neurodevelopmental disorders, clinicians, and service providers. Our third objective is to ascertain the psychometric properties of the NAS, including content validity and convergent validity. The NAS will provide an efficient transdiagnostic tool for evaluating all relevant signs, symptoms, and the dimensional constructs that underpin neurodevelopmental presentations. It is anticipated that this will maximise outcomes by enabling the delivery of personalised care tailored to an individual’s unique profile in a holistic and efficient manner.

Original languageEnglish
Article number12837
JournalInternational Journal of Environmental Research and Public Health
Volume18
Issue number23
DOIs
Publication statusPublished - 1 Dec 2021

Fingerprint

Dive into the research topics of 'Co-design of a neurodevelopment assessment scale: A study protocol'. Together they form a unique fingerprint.

Cite this