Challenges during long-term follow-up of ICU patients with and without chronic disease

H. Davies, N. Mckenzie, T.A. Williams, G.D. Leslie, R. Mcconigley, Geoffrey Dobb, S.M. Aoun

    Research output: Contribution to journalArticle

    3 Citations (Scopus)

    Abstract

    © 2015 Australian College of Critical Care Nurses Ltd. Introduction: Reflecting on researchers' experiences during follow-up of patients enrolled in research may lead to improved understanding of the challenges faced in maintaining contact when patients leave hospital. Aims: (1) Describe the challenges researchers face when following-up patients who survive ICU. (2) Identify issues that influenced our ability to follow-up patients. Methods: This sub-study was part of a larger "case-control" study investigating the quality of life of ICU survivors with and without pre-existing chronic disease. Patients completed self-assessment QLQ and symptom assessment before hospital discharge and at six months, plus they were asked to keep a paper diary of healthcare services used. Patient contact was maintained by monthly telephone calls. Each telephone call was logged and summaries of conversations documented. Our experience of conducting the study was reviewed by the identification of common issues which arose from the follow-up of patients. Results: Thirty patients with a history of chronic disease and 30 patients without underlying chronic disease were followed-up. A total of 582 telephone calls were made for 60 patients discharged from hospital of which 261 (45%) calls led to a telephone interview. Only 19 (30%) of diaries were completed and returned. We identified six challenges associated with issues that arose from the follow-up of patients. Conclusion: We underestimated the number of telephone calls required for follow-up after discharge. Diaries were unreliable sources of data suggesting strategies are needed to improve compliance. How patients respond to follow-up is not always predictable. Processes are needed to deal with unexpected information provided during telephone follow-up.
    Original languageEnglish
    Pages (from-to)27-34
    JournalAustralian Critical Care
    Volume29
    Issue number1
    DOIs
    Publication statusPublished - 2016

    Fingerprint

    Chronic Disease
    Telephone
    Research Personnel
    Preexisting Condition Coverage
    Aptitude
    Symptom Assessment
    Information Storage and Retrieval
    Compliance
    Survivors
    Case-Control Studies
    Quality of Life
    Interviews
    Delivery of Health Care
    Research

    Cite this

    Davies, H., Mckenzie, N., Williams, T. A., Leslie, G. D., Mcconigley, R., Dobb, G., & Aoun, S. M. (2016). Challenges during long-term follow-up of ICU patients with and without chronic disease. Australian Critical Care, 29(1), 27-34. https://doi.org/10.1016/j.aucc.2015.04.002
    Davies, H. ; Mckenzie, N. ; Williams, T.A. ; Leslie, G.D. ; Mcconigley, R. ; Dobb, Geoffrey ; Aoun, S.M. / Challenges during long-term follow-up of ICU patients with and without chronic disease. In: Australian Critical Care. 2016 ; Vol. 29, No. 1. pp. 27-34.
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    abstract = "{\circledC} 2015 Australian College of Critical Care Nurses Ltd. Introduction: Reflecting on researchers' experiences during follow-up of patients enrolled in research may lead to improved understanding of the challenges faced in maintaining contact when patients leave hospital. Aims: (1) Describe the challenges researchers face when following-up patients who survive ICU. (2) Identify issues that influenced our ability to follow-up patients. Methods: This sub-study was part of a larger {"}case-control{"} study investigating the quality of life of ICU survivors with and without pre-existing chronic disease. Patients completed self-assessment QLQ and symptom assessment before hospital discharge and at six months, plus they were asked to keep a paper diary of healthcare services used. Patient contact was maintained by monthly telephone calls. Each telephone call was logged and summaries of conversations documented. Our experience of conducting the study was reviewed by the identification of common issues which arose from the follow-up of patients. Results: Thirty patients with a history of chronic disease and 30 patients without underlying chronic disease were followed-up. A total of 582 telephone calls were made for 60 patients discharged from hospital of which 261 (45{\%}) calls led to a telephone interview. Only 19 (30{\%}) of diaries were completed and returned. We identified six challenges associated with issues that arose from the follow-up of patients. Conclusion: We underestimated the number of telephone calls required for follow-up after discharge. Diaries were unreliable sources of data suggesting strategies are needed to improve compliance. How patients respond to follow-up is not always predictable. Processes are needed to deal with unexpected information provided during telephone follow-up.",
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    Davies, H, Mckenzie, N, Williams, TA, Leslie, GD, Mcconigley, R, Dobb, G & Aoun, SM 2016, 'Challenges during long-term follow-up of ICU patients with and without chronic disease' Australian Critical Care, vol. 29, no. 1, pp. 27-34. https://doi.org/10.1016/j.aucc.2015.04.002

    Challenges during long-term follow-up of ICU patients with and without chronic disease. / Davies, H.; Mckenzie, N.; Williams, T.A.; Leslie, G.D.; Mcconigley, R.; Dobb, Geoffrey; Aoun, S.M.

    In: Australian Critical Care, Vol. 29, No. 1, 2016, p. 27-34.

    Research output: Contribution to journalArticle

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    AU - Davies, H.

    AU - Mckenzie, N.

    AU - Williams, T.A.

    AU - Leslie, G.D.

    AU - Mcconigley, R.

    AU - Dobb, Geoffrey

    AU - Aoun, S.M.

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    AB - © 2015 Australian College of Critical Care Nurses Ltd. Introduction: Reflecting on researchers' experiences during follow-up of patients enrolled in research may lead to improved understanding of the challenges faced in maintaining contact when patients leave hospital. Aims: (1) Describe the challenges researchers face when following-up patients who survive ICU. (2) Identify issues that influenced our ability to follow-up patients. Methods: This sub-study was part of a larger "case-control" study investigating the quality of life of ICU survivors with and without pre-existing chronic disease. Patients completed self-assessment QLQ and symptom assessment before hospital discharge and at six months, plus they were asked to keep a paper diary of healthcare services used. Patient contact was maintained by monthly telephone calls. Each telephone call was logged and summaries of conversations documented. Our experience of conducting the study was reviewed by the identification of common issues which arose from the follow-up of patients. Results: Thirty patients with a history of chronic disease and 30 patients without underlying chronic disease were followed-up. A total of 582 telephone calls were made for 60 patients discharged from hospital of which 261 (45%) calls led to a telephone interview. Only 19 (30%) of diaries were completed and returned. We identified six challenges associated with issues that arose from the follow-up of patients. Conclusion: We underestimated the number of telephone calls required for follow-up after discharge. Diaries were unreliable sources of data suggesting strategies are needed to improve compliance. How patients respond to follow-up is not always predictable. Processes are needed to deal with unexpected information provided during telephone follow-up.

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