TY - JOUR
T1 - Bereavement outcomes of carers of patients with high grade glioma
T2 - Experiences of support before and after the death
AU - Lobb, Elizabeth A. A.
AU - Halkett, Georgia K. B.
AU - McDougall, Emma
AU - Campbell, Rachel
AU - Dhillon, Haryana M. M.
AU - Phillips, Jane L. L.
AU - Nowak, Anna K. K.
PY - 2023/11/26
Y1 - 2023/11/26
N2 - Carers of people with High Grade Glioma (HGG) completed a survey assessing their anxiety, depression, and grief in addition to open-ended questions exploring their experiences of support pre- and post-death (N = 25). One-third reported borderline or clinical levels of anxiety, depression, and grief related distress. Given the poor prognosis and rapid deterioration of patients with HGG, the findings highlight the importance of sensitive communication about prognosis early in the disease trajectory, information tailored to disease stage, the initiation of a referral to psychological support services, and timely discussions about the preferred place of care and death.
AB - Carers of people with High Grade Glioma (HGG) completed a survey assessing their anxiety, depression, and grief in addition to open-ended questions exploring their experiences of support pre- and post-death (N = 25). One-third reported borderline or clinical levels of anxiety, depression, and grief related distress. Given the poor prognosis and rapid deterioration of patients with HGG, the findings highlight the importance of sensitive communication about prognosis early in the disease trajectory, information tailored to disease stage, the initiation of a referral to psychological support services, and timely discussions about the preferred place of care and death.
KW - Quality-of-life
KW - Family caregivers
KW - Brain-tumor
KW - Psychometric properties
KW - Complicated grief
KW - Hospital anxiety
KW - Cancer
KW - Depression
KW - Needs
KW - End
UR - https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=uwapure5-25&SrcAuth=WosAPI&KeyUT=WOS:000935516200001&DestLinkType=FullRecord&DestApp=WOS
UR - http://www.scopus.com/inward/record.url?scp=85148349593&partnerID=8YFLogxK
U2 - 10.1080/07481187.2023.2167888
DO - 10.1080/07481187.2023.2167888
M3 - Article
C2 - 36786747
SN - 0748-1187
VL - 47
SP - 1094
EP - 1103
JO - Death Studies
JF - Death Studies
IS - 10
ER -
