Abstract
© 2014 Asian Pacific Society of Respirology. There is little Australian epidemiologic data on idiopathic pulmonary fibrosis (IPF), a relatively uncommon but devastating disease. The vast geographic distances in Australia have been a major impediment for collaborative research into IPF. A collaborative national effort, the Australian IPF Registry, has been formed, launched and is recruiting successfully (n = 359, January 2014). Our experience provides unique insights for others wishing to set up IPF registries and in time for a global IPF registry.
Original language | English |
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Pages (from-to) | 1088-1091 |
Journal | Respirology |
Volume | 19 |
Issue number | 7 |
DOIs | |
Publication status | Published - 2014 |