TY - JOUR
T1 - An Evaluation of the Overall Utility of Measures of Functioning Suitable for School-Aged Children on the Autism Spectrum
T2 - A Scoping Review
AU - Hayden-Evans, Maya
AU - Milbourn, Benjamin
AU - D’Arcy, Emily
AU - Chamberlain, Angela
AU - Afsharnejad, Bahareh
AU - Evans, Kiah
AU - Whitehouse, Andrew J.O.
AU - Bölte, Sven
AU - Girdler, Sonya
N1 - Funding Information:
The authors declare no direct conflict of interest related to this article. S.B. declares no direct conflict of interest related to this article. S.B. reports grants from the Swedish Research Council, the Swedish Research Council for Health, Working Life and Welfare, FORMAS, VINNOVA, Trygg Hansa, Stiftelsen Clas Groschinskys Minnesfond, Stiftelsen Sunnerdahls Handikappfond, and Promobilia for his research on the ICF. S.B. discloses that he has in the last 3 years acted as an author, consultant or lecturer for Medice and Roche. He receives royalties for textbooks and diagnostic tools from Hogrefe, and Liber. S.B. is shareholder in SB Education/Psychological Consulting AB and NeuroSupportSolutions International AB. The funders had no role in the design of this study; in the collection, analyses, or interpretation of data; in the writing of the manuscript, or in the decision to publish the results. The Autism CRC reviewed the manuscript prior to publication to ensure that it aligned with their Language and Terminology Guide.
Funding Information:
The authors acknowledge the financial support of the National Disability Insurance Agency (NDIA) (project number 0.012) and Autism CRC (project numbers 3.061 and 0.012), established and supported under the Australian Government’s Cooperative Research Centre Program. A.J.O.W. is supported by an Investigator Grant from the National Health and Medical Research Council (grant no. 1173896).
Publisher Copyright:
© 2022 by the authors.
PY - 2022/11
Y1 - 2022/11
N2 - A diagnosis of an autism spectrum condition (autism) provides limited information regarding an individual’s level of functioning, information key in determining support and funding needs. Using the framework introduced by Arksey and O’Malley, this scoping review aimed to identify measures of functioning suitable for school-aged children on the autism spectrum and evaluate their overall utility, including content validity against the International Classification of Functioning, Disability and Health (ICF) and the ICF Core Sets for Autism. The overall utility of the 13 included tools was determined using the Outcome Measures Rating Form (OMRF), with the Adaptive Behavior Assessment System (ABAS-3) receiving the highest overall utility rating. Content validity of the tools in relation to the ICF and ICF Core Sets for Autism varied, with few assessment tools including any items linking to Environmental Factors of the ICF. The ABAS-3 had the greatest total number of codes linking to the Comprehensive ICF Core Set for Autism while the Vineland Adaptive Behavior Scales (Vineland-3) had the greatest number of unique codes linking to both the Comprehensive ICF Core Set for Autism and the Brief ICF Core Set for Autism (6–16 years). Measuring functioning of school-aged children on the spectrum can be challenging, however, it is important to accurately capture their abilities to ensure equitable and individualised access to funding and supports.
AB - A diagnosis of an autism spectrum condition (autism) provides limited information regarding an individual’s level of functioning, information key in determining support and funding needs. Using the framework introduced by Arksey and O’Malley, this scoping review aimed to identify measures of functioning suitable for school-aged children on the autism spectrum and evaluate their overall utility, including content validity against the International Classification of Functioning, Disability and Health (ICF) and the ICF Core Sets for Autism. The overall utility of the 13 included tools was determined using the Outcome Measures Rating Form (OMRF), with the Adaptive Behavior Assessment System (ABAS-3) receiving the highest overall utility rating. Content validity of the tools in relation to the ICF and ICF Core Sets for Autism varied, with few assessment tools including any items linking to Environmental Factors of the ICF. The ABAS-3 had the greatest total number of codes linking to the Comprehensive ICF Core Set for Autism while the Vineland Adaptive Behavior Scales (Vineland-3) had the greatest number of unique codes linking to both the Comprehensive ICF Core Set for Autism and the Brief ICF Core Set for Autism (6–16 years). Measuring functioning of school-aged children on the spectrum can be challenging, however, it is important to accurately capture their abilities to ensure equitable and individualised access to funding and supports.
KW - adaptive behaviour
KW - assessment
KW - autism spectrum disorder
KW - diagnosis
KW - ICF Core Sets
UR - http://www.scopus.com/inward/record.url?scp=85141835656&partnerID=8YFLogxK
U2 - 10.3390/ijerph192114114
DO - 10.3390/ijerph192114114
M3 - Review article
C2 - 36360993
AN - SCOPUS:85141835656
SN - 1661-7827
VL - 19
JO - International Journal of Environmental Research and Public Health
JF - International Journal of Environmental Research and Public Health
IS - 21
M1 - 14114
ER -