A qualitative study of the post-treatment experiences and support needs of survivors of lymphoma

Leanne Monterosso, Karen Taylor, Violet Platt, Elizabeth Lobb, Meinir Krishnasamy, Toni Musiello, Caroline Bulsara, Kendall Stratton, David Joske

Research output: Contribution to journalArticlepeer-review

26 Citations (Scopus)

Abstract

Purpose To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors. Methods Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6–30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited. Results Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred post-treatment care. Participants described a sense of loss as they transitioned away from regular interaction with the hospital at the end of treatment, but also talked about the need to find a “new normal”. Establishing post-treatment support structures that can provide individualised information, support, reassurance and referrals to community and peer support were identified as a helpful way to navigate the transition from patient to post-treatment survivor. Conclusions Participants in our study articulated a need for a flexible approach to survivorship care, providing opportunities for individuals to access different types of support at different times post-treatment. Specialist post-treatment nurse care coordinators working across acute and community settings may offer one effective model of post-treatment support for survivors of haematological malignancies. © 2017 Published by Elsevier Ltd.

Original languageEnglish
Pages (from-to)62-68
Number of pages7
JournalEuropean Journal of Oncology Nursing
Volume28
Early online date28 Mar 2017
DOIs
Publication statusPublished - 1 Jun 2017

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