Towards Evidence Based Care for Rett Syndrome - A Research Model to Inform Management of Rare Disorders

  • Leonard, Helen (Chief Investigator)
  • Downs, Jennepher (Chief Investigator)
  • Elliott, Elizabeth (Chief Investigator)
  • Christodoulou, John (Chief Investigator)
  • Jacoby, Peter (Chief Investigator)
  • Torode, Ian (Chief Investigator)
  • Ellaway, Carolyn (Chief Investigator)

Project Details

Effective start/end date1/01/1131/12/13


  • National Health & Medical Research Council NHMRC

Research Output

  • 1 Citation (Scopus)

    Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

    Downs, J., Jacoby, P., Leonard, H., Epstein, A., Murphy, N., Davis, E., Reddihough, D., Whitehouse, A. & Williams, K., 15 Mar 2019, In : Quality of Life Research. 28, 3, p. 783-794 12 p.

    Research output: Contribution to journalArticle

  • 7 Citations (Scopus)
  • 1 Citation (Scopus)