Research Output per year
Fingerprint Fingerprint is based on mining the text of the person's scientific documents to create an index of weighted terms, which defines the key subjects of each individual researcher.
- 3 Similar Profiles
Rett Syndrome
Medicine & Life Sciences
Intellectual Disability
Medicine & Life Sciences
Scoliosis
Medicine & Life Sciences
Quality of Life
Medicine & Life Sciences
Walking
Medicine & Life Sciences
Mutation
Medicine & Life Sciences
Databases
Medicine & Life Sciences
Gastrostomy
Medicine & Life Sciences
Network
Recent external collaboration on country level. Dive into details by clicking on the dots.
Research Output 2009 2019
Cannabis for refractory epilepsy in children: A review focusing on CDKL5 Deficiency Disorder
Dale, T., Downs, J., Olson, H., Bergin, A. M., Smith, S. & Leonard, H., Mar 2019, In : Epilepsy Research. 151, p. 31-39 9 p.Research output: Contribution to journal › Review article
Epidemiology of gastrostomy insertion for children and adolescents with intellectual disability
Wong, K., Leonard, H., Pearson, G., Glasson, E. J., Forbes, D., Ravikumara, M., Jacoby, P., Bourke, J., Srasuebkul, P., Trollor, J., Wilson, A., Nagarajan, L. & Downs, J., Mar 2019, In : European Journal of Pediatrics. 178, 3, p. 351-361 11 p.Research output: Contribution to journal › Article
Gastrostomy
Intellectual Disability
Epidemiology
Social Class
Disabled Children
Facilitators and Barriers of Participation in “Uptime” Activities in Girls and Women With Rett Syndrome: Perspectives From Parents and Professionals
Stahlhut, M., Esbensen, B. A., Larsen, J. L., Bisgaard, A. M., Downs, J. & Nordmark, E., 1 Mar 2019, In : Qualitative Health Research. 29, 4, p. 609-619 11 p.Research output: Contribution to journal › Article
Rett Syndrome
Parents
Exercise
Health Planning
Social Environment
Incidence and prevalence of falls in adults with intellectual disability living in the community: a systematic review
Ho, P., Bulsara, M., Downs, J., Patman, S., Bulsara, C. & Hill, A. M., 1 Mar 2019, In : JBI Database of Systematic Reviews and Implementation Reports. 17, 3, p. 390-413 24 p.Research output: Contribution to journal › Article
Intellectual Disability
Disabled Persons
Incidence
Research Design
Cohort Studies
1
Citation
(Scopus)
Longitudinal effects of caregiving on parental well-being: the example of Rett syndrome, a severe neurological disorder
Mori, Y., Downs, J., Wong, K. & Leonard, H., Apr 2019, In : European Child and Adolescent Psychiatry. 28, 4, p. 505-520 16 p.Research output: Contribution to journal › Article
Rett Syndrome
Nervous System Diseases
Sleep
Parents
Single Parent
Projects 2011 2021
Implementing Telehealth Support to Increase Physical Activity in Girls and Women with Rett Syndrome
Downs, J., Leonard, H., Stahlhut, M., Lotan, M. & Elefant, C.
International Rett Syndrome Foundation
1/04/19 → 31/03/21
Project: Research
Does gastrostomy improve the lives of children with severe disability and their families?
Downs, J., Leonard, H., Geelhoed, E., Forbes, D., Jacoby, P., Trollor, J., Nagarajan, L., Ravikumara, M., Wong, K. & Wilson, A.
National Health & Medical Research Council NHMRC
1/01/16 → 31/12/19
Project: Research
Characterising quality of life and its determinants for children with intellectual disability and their families
Downs, J., Leonard, H., Whitehouse, A., Jacoby, P., Williams, K., Davis, E. & Reddihough, D.
National Health & Medical Research Council NHMRC
1/01/16 → 31/12/18
Project: Research
The InterRett Database - Looking Back and Looking Forward
Leonard, H., Downs, J., Carter, K. & Anderson, A.
International Rett Syndrome Foundation
1/03/14 → 28/02/16
Project: Research